I remember the AIDS crisis very well.
The first time I was exposed to it was when a guy a few years behind me in school was rumored to have the disease. Eventually he just... disappeared. No news. No nothing. I have no idea what ever became of him. I do know that his younger brother deflected it by telling unfunny gay and AIDS jokes.* I guess he was intent on making sure nobody thought he was gay too. At the time, I didn't know much about AIDS (there wasn't much to know) but it still seemed incredibly sad. If the guy did have AIDS, then even his family was ridiculing him as he was struggling.
I grew up in rural America where homosexuality was so deep in the closet that it was virtually unheard of outside of gay jokes and people like Boy George becoming famous. I'm sure gay people existed here in the 80's when the AIDS epidemic was beginning, but they were invisible in our community so far as I knew. Probably out of necessity. I heard more than one story of people being run out of town (or, more likely, being threatened with being run out of town) for whatever reason (like having the wrong color skin, for example). So if you were gay and still wanted to live here knowing how some of the natives are, you probably didn't talk about your sexuality openly.
Heck, I had a hard enough time growing up here when people just thought I was gay.** I'm not the most masculine of guys, and apparently that's enough. Never mind that I've only ever dated women and am not sexually attracted to men,*** it's what people think that matters.
Anyway... where was I? Oh yeah.
And then I graduated high school in 1984 and found my way to the real world.
At this time people didn't know much about HIV and AIDS. It was still very much thought of as a "gay disease" even though it had spread far beyond that. I remember seeing protests on the news because people didn't want to send their kids to school if another student had AIDS. Ignorance and fear were rampant and there was a huge amount of misinformation about how you get the disease. Everybody was in a panic, and our government seemed uninterested in helping matters. Despite this horrific failure by President Reagan and our elected officials, people had become better-educated by the time I was finishing up community college in 1986-87. But the stigma was still there. As were the deaths.
My occupation in graphic design is a highly creative field. For whatever reason, creative jobs attract a higher-than-average number of gay persons to their ranks. Which meant I had to set aside my sheltered upbringing and go from barely knowing homosexuality exists... to working with gay people on a regular basis. Luckily my parents provided an atmosphere of tolerance growing up which made this an easy adjustment. What was not easy was living from day to day wondering if any of my friends and colleagues were going to end up missing due to an AIDS-related illness. I'd call to speak with somebody I had been working with just the week before... only to be told that they were no longer there. They were too sick to work. You knew it was coming. They would tell you it was coming. But it was never an easy thing to hear. Sometimes I was able to make it to Seattle or Portland or San Francisco to visit them. Sometimes I wasn't. Sometimes I made it to their funeral.
After a while it became difficult to get through the week without AIDS being a part of the picture. If it wasn't news about somebody you knew, it was somebody known by somebody you knew. As we reached the 90's you'd find yourself becoming numb to it. You had to. It was the only way to stay sane. Usually hearing that somebody died is like a bomb being dropped. Even if you didn't know them very well. But now it was worked into passive conversation. You'd find out someone was gone while eating dinner. It would be "Can you pass the guacamole? Oh... did I mention Bryan died last week?"
It's almost impossible to describe what it was like if you weren't there.
And I'm straight.
I'm filled with despair trying to wrap my head around what it was like for the gay community. I had friends who told me that they spent years in hospitals. Years. Not because they were sick, but because everybody they knew was sick or dying. I am aghast if I have to attend a funeral once a year. If you were an integral part of a large gay community, you might end up at a funeral every month.
Due to the AIDS epidemic, the 80's and early 90's were a tragic time of sadness and loss for a great many people.
As I said, I remember it very well. Too well.
Which is why reading this morning that President Trump's administration has removed $260 million from cancer research, HIV/AID prevention, and other programs is hard to take. AIDS hasn't gone away. AIDS is still here. I know people living with AIDS right now. There still is no cure for AIDS. And the minute we lose vigilance, it could explode all over again. Sure, AIDS is survivable now... it's not a guaranteed death sentence as it once was... but it's still a horrible disease which can have dire consequences. And we want to take money away from making sure it doesn't become a massive health crisis all over again? I don't get it. And if people aren't completely outraged, they don't get it either.
Towleroad published an article yesterday called Wasn't That Long Ago which collects tweets by Tucker Shaw about what it was like to lose somebody back in the day. And here it is in case you didn't know or have forgotten...
I overheard a young man on the train on the way home today, talking to another young man. Holding hands. In college, I guessed. About that age anyway. Much younger than I am. He was talking about AIDS, in a scholarly way. About how it had galvanized the gay community. How it had spurred change. Paved the way to make things better, in the long run.
The long run.
Maybe he’s right. I don’t know. It’s not the first time I’ve heard the theory. He spoke with clarity and with confidence. Youthful, full of conviction. But. Remember how terrible it was, not that long ago, during the worst times. How many beautiful friends died. One after the other. Brutally. Restlessly. Brittle and damp. In cold rooms with hot lights. Remember? Some nights, you’d sneak in to that hospital downtown after visiting hours, just to see who was around. It wasn’t hard. You’d bring a boom box. Fresh gossip. Trashy magazines and cheap paperbacks. Hash brownies. Anything. Nothing. You’d get kicked out, but you’d sneak back in. Kicked out again. Back in again. Sometimes you’d recognize a friend. Sometimes you wouldn’t.
Other nights, you’d go out to dance and drink. A different distraction. You’d see a face in the dark, in the back of the bar. Is it you? Old friend! No. Not him. Just a ghost. At work, you’d find an umbrella, one you’d borrowed a few rainstorms ago from a coworker. I should return it, you’d think. No. No need. He’s gone. It’s yours now. Season after season. Year after year.
One day you’d get lucky and meet someone lovely. You’d feel happy, optimistic. You’d make plans. Together, you’d keep a list of names in a notebook you bought for thirty cents in Chinatown so you could remember who was still here and who wasn’t, because it was so easy to forget. But there were so many names to write down. Too many names. Names you didn’t want to write down. When he finally had to go too, you got rid of the notebook. No more names.
Your friends would come over with takeout and wine and you’d see how hard they tried not to ask when he was coming home because they knew he wasn’t coming home. No one came home. You’d turn 24. When he’d been gone long enough and it was time to get rid of his stuff, they’d say so. It’s time. And you’d do it, you’d give away the shirts, sweaters, jackets. Everything. Except those shoes. You remember the ones. He loved those shoes, you’d say. We loved those shoes. I’ll keep those shoes under the bed.
You’d move to a new neighborhood. You’d unpack the first night, take a shower, make the bed because it’d be bedtime. You’d think of the shoes. For the first time, you’d put them on. Look at those shoes. What great shoes. Air. You’d need air. You’d walk outside in the shoes, just to the stoop. You’d sit. A breeze. A neighbor steps past. “Great shoes,” she’d say. But the shoes are too big for you. You’d sit for a while, maybe an hour, maybe more. Then you’d unlace the shoes, set them by the trash on the curb. You’d go back upstairs in your socks. The phone is ringing. More news.
The long run. Wasn’t that long ago.
No. No it wasn't that long ago.
To me it seems like it was only yesterday.
How long must it seem to the people running this country?
*The only joke I remember hearing him tell had something to do with a ferry rear-ending a sailboat in Puget Sound and now they both have AIDS. Yeah, hilarious.
**Many people still do, I'm sure.
***Though, if I'm being honest, I think I have better relationships with men. I'm not sexually attracted to men. I've never had sex with a man. But building a healthy relationship with women is apparently not something I'm built for because they never last. Even when the sex is great. Which is why I'm guessing I'm still single. Meanwhile, I've had non-sexual relationships with men whom I love on a near-spiritual level that have lasted decades. So... never say never, I guess. I've had sex with women whom I wasn't sexually attracted to, so maybe one day I'll meet the right guy and everything will change! If it happens, dear reader, you'll be the first to know.
I like what I wrote in 2012.
So rather than come up with something that's sure to be worse, you can read my post of World AIDS Day here.
I started writing an entry for today, then realized what I had written back in 2008 still holds true and sums up what I feel perfectly. And so, a repeat, of sorts...
Today is World AIDS Day.
Back when I was in high school, there was talk going around about the "disease that kills faggots dead," and I remember very well listening to some insane bitch on television spout off about how God's retribution against the homosexuals was at hand. Of course, for the homophobic masses, it was too good to be true. Or too good to last. Because AIDS soon moved on to heterosexuals, which was still okay because they obviously did something to incur God's wrath, right? But then children started getting AIDS and, since nobody wants to think that God would give a child AIDS, attitudes towards the disease started to change.
But not fast enough.
Because I also remember the widespread panic that hit in the late 80's as there was serious concerns that the AIDS crisis was going to wipe out a massive chunk of the population before anything could be done to stop it. This eventually proved to be true, but not to the genocidal levels that were originally projected by some of the more alarmist "specialists" in the field.
I've known exactly four people who have died of AIDS.
To me this seems like a tragic number to have died from anything, but it's barely a blip on the radar to some people I know. People who tell horror stories of how they did nothing but go to funerals in the late 80's and early 90's, and how most everybody they knew who wasn't already dead was dying. An unfathomable situation that would test the resolve of anybody.
Yet the human condition prevails. The survivors pick up the pieces and move on as best they can...
AIDS is not over.
AIDS is happening right now.
AIDS is still killing people around the globe.
And now a new generation is reaching sexual maturity. A generation which has no memory of the rampant destruction that AIDS is capable of unleashing... not in some far away country, but right here at home.
Somebody has to educate them
And that's why today we remember.
Learn what you can. Pass it along.
Though I knew about AIDS far earlier, I first learned about AIDS from the TV show 21 Jump Street on February 7th, 1988. In the episode "A Big Disease with a Little Name" Johnny Depp's character is assigned to protect a student with AIDS at a local school that doesn't want him there. As the story progresses, they did a pretty good job of explaining what was known about the disease but, more importantly, they were careful to put humanity above all the clinical details and cold facts. It made for a compelling story which has haunted me ever since.
Because when discussing H.I.V. and AIDS, it's essential not to forget that what we're actually talking about is real people with hope, dreams, and fears just like everybody else on earth.
So on this World AIDS Day I encourage everybody to not only review the facts, but to also show their support for those who are living with AIDS. Through the miracle of modern medicine, AIDS is not the death sentence it was back in 1988, but the prejudice has never truly faded away...
Educate yourself. Protect yourself. Educate others.
But above all, be a compassionate and caring human being. That's the way they handle things on 21 Jump Street, and the world is a better place because of it.
If you're so inclined, you can have an 80's flashback and watch A Big Disease with a Little Name by visiting this Hulu link or this YouTube link. Prepare yourself for acid-wash jeans and mullets!